How to purchase a ticket…
If you would like to attend, make a donation on here of $150 per ticket with your name and number of tickets you would like. (All donations are Tax deductible) We are a registered charity with DGR status. :)
I.e if you would like two tickets donate $300, 3 tickets $450 etc. and in the comments you can write your guests names or we will just put down your name x number of tickets.
Imagine…
Out of nowhere being completely paralysed, no reason why, no cure and no prognosis of when you will recover! Yeah, we know, pretty horrible! But this is the reality for GBS patients and their families.
You can make a HUGE difference by joining us as we build awareness, raise funds and celebrate life on 10th June at The Tatler Bar, Sydney. Details below:
Let’s make a difference:
Guillain Barre Syndrome turns your life upside down, it can happen to anyone, at any age and at any time with no cure. We are here to listen to individual journey’s, provide information and up to date research, support those suffering from GBS and their families financially and emotionally improving their quality of your life and help get those affected back to their normal self as soon as possible.
What is GBS?
Guillain Barre Syndrome pronounced (Ghee-lan Barré) is an acute disorder of the peripheral nerves, the immune system starts attacking itself, causing weakness and paralysis of the limbs.
But there’s a problem
- It has not yet understood how or why people get GBS.
- The awareness of GBS is very low, you may not have even heard of it before you read this page.
- Misdiagnosis from doctors. The longer it takes to correctly diagnose GBS the longer it will take to recover.
- GBS doesn’t discriminate it can happen to anyone, at any age.
- Once diagnosed with GBS there is no cure.
- Financially disabling: It is very unlikely that those with GBS are able to continue at work for at least 3 months and in some cases ever. This is financially crippling for most families and individuals, it is extremely difficult to just get by.
- Your life completely changes and that is very hard to deal with. Imagine it was you or someone you love…One day you are fit and healthy, the next day, any certainty you had about the future is suspended.
- Recovery/Rehabilitation; The length of time you have GBS is unpredictable, and may require months of hospital care and rehabilitation. As nerve function returns, patient may need assistance to learn how to use affected muscles. Rehabilitation can be very expensive around $100 per hour in some clinics. Because nerve damage in GBS can be so bad an individual in recovery may need 4-5 hours a week and with no income this is extremely hard for most families.
- Depression and exclusion; Immediate consequences of GBS, such as pain, discomfort, and difficulty in communicating (if ventilated), are frightening. The human reaction to these kinds of threats to security and wellbeing is to feel anxious or angry. Along with depression, a sense of helplessness and loss of control or grief. This can be very isolating, frustrating and lonely. It can be very emotionally upsetting for families and children.
Here’s what we’re doing about it
- Avoiding misdiagnosis and increasing public awareness by educating both the professional and lay communities about GBS.
- Raising Awareness through campaigns, events, social media and much more.
- Funding screening of GBS, symptoms and treatment, as well as counselling.
- Creating community through our Ambassador program and Buddy program
- Funding rehabilitation sessions for those who can’t avoid it but desperately need it.
- Funding alternative therapies such as acupuncture, remedial massages etc.
- Looking after the carers of GBS patients, financially and emotionally.
- Organizing patient transport services to enable patients to access healthcare.
- Purchasing diagnostic and treatment equipment for hospitals and medical centres.
- Providing advice on nutrition and exercise for people who suffer from GBS
- Help on social integration for patients and families.
- Giving our time to listen and be a support to those with GBS and their families.
- Undertaking research into the causes, diagnosis, treatment and/or management of GBS and publishing the results of that research and that of independent research already completed.
- With your help we can really change people’s lives’ and put an end to Guillain Barre Syndrome
How you can join us:
We ask you to donate generously, (DONATE button to the right of this) to help raise our target for the campaign to help several families suffering from GBS. The more you donate the bigger the impact you can make to other people’s lives.
Thank you so much for your time and donation :)
Learn, Like and Share on our Social Media pages
Instagram: gbs_foundation_australia
Facebook:@gbsfoundation
Website: www.guillainbarresyndrome.org